|Jake & Hannah at Camp Boggy Creek|
|Hannah & Jake both getting 1st dose of Actemra|
Even more reasons why we all need to speak to our local Congressman and let them know arthritis is not ok! We can't possibly accept that it's ok to cut research dollars which will result in fewer opportunities for new biologic medications. I don't want to let go of my dream....FINDING A CURE for ARTHRITIS! Spending those few days in Washington DC was the BEST! Jake and Hannah were able to reconnect with JRA buddies and be assured that are not alone with living with JRA. Hannah asked me almost everyday, Mommy, why are our JRA friends like our best friends?"
|Family Night at JA Conference in Washington DC|
I feel like we just got home and summer is over. Our family is ready to begin our newest adventure--- Homeschooling. For MANY reasons, we have decided to try something new in hopes it will be better for Jake and Hannah. They are both super excited and don't have any reservations about missing happenings at LCS. The flexibility and being able to work around medical appointments, infusions (every 14 days), flare up's and illnesses is just one of the advantages of homeschooling. We are beyond fortunate to have been placed with the most amazing Hospital Homebound teacher, Miss Nancy. I will NEVER have to explain anything, she has lived with arthritis as a young child herself and battled the disease as well as lymphoma several times. She understands being nauseous a few days after Methotrexate shots, and the hyper moods after bursts of steroids, the lack of concentration during a flare and the sudden fevers and quick illness onsets. I am looking forward to this new Homeschool adventure and praying Jake and Hannah will benefit from the Hospital Homebound program.
|The Sloan Siblings Raising their Hands Against Arthritis!|