|1.2% chance siblings can both have JRA!|
|Sloan Siblings both living with JRA!|
Here's what I found in a recent article from Kids Get Arthritis, Too,Volume 10, 2010 issue. An article Linda Brown wrote on JRA: All in the Family? We already know that there is 300,000 children with JRA. That is one in 1,000 children under the age 16 has JRA. A new study was done by Dr. Prahalad showed that there is a 1.2 percent greater risk of a sibling getting JRA (when there is already one child in family with JRA). "So there is a 98 percent chance that the family would NOT have another child with arthritis." As for our family, Hannah wasn't diagnosed until she was 2 1/2 years old and she was our second child. NOBODY wanted to believe me that Jake had arthritis, too! Yes -I was told..."No, you can't have two kids with JRA". Well, maybe Bobby and I should have played the lottery because we have two kids with JRA. We were not fortunate to fit into the 98 percent who would not have another child with any type of arthritis.
First Cousins..... Dr. Prahalad found the risk drops to six times greater than the general population. (That would be about 1/2 percent chance that 2 first cousins would have JRA). I'd like to say this should not be of any concern for parents and adults who are considering having children with auto-immune diseases like arthritis in their immediate family. But we are living proof- it can happen and did happen to The Sloan Family! Many parents who have a child with JRA ask me what I think about them having another child and they worry will they have another child with JRA? Here is what researchers know as of today-- 98 percent chance that you won't have another child with arthritis! All I can say is thank goodness Bobby and I got my girl and we stopped at 2 children!! Don't think we could afford any more medical costs and mental status of me would be a scary thought!
|Jake & Hannah both getting infusions at Shands Hospital.|
|Something we all have shared together.... SHOTS!|
One of the things that bother me the most is..... will Jake and Hannah be able to have a family themselves due to all these many years of heavy drugs that I choose to give them and will their kids also inherit JRA?? There has not been any studies on JRA kids having children of their own inheriting JRA. At this point researchers know more of sibling pairs than parent-child pairs with JRA. Like I said, I should of played the lottery! What were my chances of me having JRA just like my mom and then having a child with JRA, then another child with JRA?? So for those people who are inconsiderate..... I did not choose to have a family knowing they'd have JRA!
This is why I am committed to the Arthritis Foundation and support research. I want to have grandchildren one day and don't want them to have the same life that Jake and Hannah are living everyday! We need to find a cure and better medications for these precious children!
Arthritis is the #1 Disability in our country and is simply Not acceptable!!